Download PDF As my body attacks itself: My journey with autoimmune disease, chronic pain & fatigue, by Kelly Morgan Dempewolf
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As my body attacks itself: My journey with autoimmune disease, chronic pain & fatigue, by Kelly Morgan Dempewolf
Download PDF As my body attacks itself: My journey with autoimmune disease, chronic pain & fatigue, by Kelly Morgan Dempewolf
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Review
More than 50 million people have been diagnosed with autoimmune disease. There are many stories illustrating how the diagnosis not only takes a physical toll on a patient but also affects them emotionally, psychologically and financially. Within these tales of extreme pain and uncertainty underlies one common theme: the amount of time that it takes to receive an accurate diagnosis. A 2014 American Autoimmune Related Diseases Association (AARDA) survey revealed that it takes four years and five different physicians for a patient to receive an accurate diagnosis. As in Kelly's case, many patients are labeled chronic complainers and their concerns dismissed. If concerns are not dismissed, patients can be prescribed a variety of medications. Many times, without an exact diagnosis, these medications can potentially exacerbate a patient's condition. Not only are bodies being drained physically but so are finances. AARDA has heard Kelly's concerns. In an effort to alleviate patient suffering, AARDA distributed a physician survey to gauge how much autoimmune disease education they received in medical school. The results are alarming. The survey showed that 13% of the respondents didn't receive any autoimmune disease education at all while only 22% received five or more lectures. Sadly, 32% believed that they didn't receive enough training to diagnose or treat autoimmune disease and half of those that responded were uncomfortable with diagnosing autoimmune disease. These results are why Kelly's story is so timely and needed. Her chronicles are relatable and speak to the need of increased autoimmune disease education. Hopefully, readers will not overlook Kelly's bravery and only see only the challenges that she has endured. We hope that patients find strength to speak up and speak out about autoimmune disease. Writing letters to their Congressperson, participating in awareness walks and taking their stories to the local media are only a few ways to take action. Awareness and education depends on us...the 50 million with autoimmune disease. --Virginia T. Ladd, Executive Director and President of the American Autoimmune Related Diseases Association (AARDA)
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About the Author
Kelly Morgan Dempewolf, PhD, is a mother of two, wife, science educator and Sjögren’s Syndrome patient. She is the author of a high school chemistry textbook Discovering Chemistry You Need to Know, NSTA Press’s book Mastery Learning in Science and numerous education articles. She began the blog www.asmybodyattacksitself.com as a way to process and communicate her struggles with chronic disease.
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Product details
Paperback: 200 pages
Publisher: K2CS Books; 1 edition (November 28, 2014)
Language: English
ISBN-10: 0986297100
ISBN-13: 978-0986297106
Product Dimensions:
5.2 x 0.5 x 8 inches
Shipping Weight: 10.2 ounces (View shipping rates and policies)
Average Customer Review:
4.2 out of 5 stars
23 customer reviews
Amazon Best Sellers Rank:
#231,276 in Books (See Top 100 in Books)
Thank you Kelly for telling your story. Though I have suffered its symptoms for many years, I was just recently diagnosed with Sjogrens. It was good to know that I am not alone in my feelings regarding this disease. Your book put everything into perspective for me.I highly recommend this book too anyone that is suffering from an auto immune disease. You are not alone.
Enjoyable read, speaks to many of the "intangibles" of a chronic illness. I read it in one day, and have now asked my husband to read it. I think it will help him see some of the things I have difficulty communicating, and a confirmation of some of the things I can.
This clearly explains the difficulties of finding a diagnosis for a disease that doctors are not that well versed with. It also helps one see the affects of friends and family who don't understand - and some who do.Sjogren's is something I have, too, and find extremely frustrating that few doctors really know about it or how to treat its symptoms.
I really enjoyed reading this book, it was a validation of sorts knowing that others feel the same way as I do dealing with this disease. This is a book for everyone to read whether you or a loved one is suffering from chronic illness or invisible disease, it helps explain some of the many things that are going on inside us as we come to terms with it. Kudos Kelly on a job well done!
Kelly, a photographer, paints a vivid portrait of what it is like to live with autoimmune conditions. Like her, it took time for my pain and fatigue to be understood in context of other symptoms, and like her, I received various diagnoses and treatments. But she writes about it so eloquently that other people can both identify with and understand her point of view.
I have been officially diagnosed with the same auto immune disease fiveYears ago. I identify with many of your symptoms especially the not beingAware and seeing what is really going on with me and faking with others.The severe issue with increasing fatigue is so relevant. Thank you for sharingYourself with us.
This book shares some good facts about what people who have Sjogren's Syndrome experience during their quests to figure out just what is happening to their bodies. She shares from her own personal journey in a way that's easy to read.
It is like Kelly had been living my life. Her description of her life with Sjogrens has helped me see many aspects of the disease that I have been trying not to recognize or deal with. Thank you Kelly for sharing your story and ours.
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